Logo du projet EPICE

RECAP Preterm

Research on European Children and Adults born Preterm

Project summary

The overall aim of the RECAP preterm project is to improve the health, development and quality of life of children and adults born very preterm (VP), i.e. less than 32 weeks of gestation, or with a very low birth weight (VLBW), i.e. less than 1500g.  We will investigate the origins of VP/ VLBW health and developmental outcomes to aid the development of more effective, evidence-based, personalised interventions and prevention measures.

The RECAP preterm Cohort Platform, will bring together extensive data from 20 population-based cohorts of children and young adults born very preterm from 13 European countries as well as further cohorts from around the world.


  • to create a sustainable, geographically diverse and multidisciplinary platform of national and European cohorts of VP/ VLBW, constituted over a 30 year time span, to optimise the use of population data for research and innovation in healthcare and policy
  • to develop hypothesis-driven research on health and care of VP/ VLBW children and adults that builds on the unique opportunities provided by the larger sample sizes of combined cohorts and the added value of their geographic and temporal diversity
  • to integrate exchange with stakeholders into the platform in order to disseminate results, to translate them into evidence-based care and policy
  • to involve society and emphasize patient and public involvement in order to reflect real-world needs

This unique network will enable us to evaluate changes in outcomes over time while providing important information on how the evolution in care of these high-risk babies has changed their developmental outcomes and quality of life.

Project coordination

The project coordination is ensured by the coordinator (TNO) in tandem with the Project Management Office (TNO, UoW and INSERM)


This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 733280.


Project Participants

RECAP preterm brings together 20 transdisciplinary Institutions (see participants below).

  • TNO                      Netherlands Organisation for Applied Scientific Research         Netherlands
  • UoW                     The University of Warwick, UK
  • INSERM              Institut National de la Santé et de la Recherche Médicale, France
  • ISPUP                   Institute of Public Health of the University of Porto       Portugal
  • MedLaw               MedLawconsult (Van Veen, Toegepast Gezondheidsrecht)        Netherlands
  • INESC TEC         Instituto de Engenharia de Sistemas e Computadores, Tecnologia e Ciência, Portugal
  • ULEIC                 University of Leicester, UK
  • THL                     National Institute for Health and Welfare, Finland
  • EFCNI                 European Foundation for the Care of Newborn Infants, Germany
  • NTNU                 Norwegian University of Science and Technology, Norway
  • KI                         Karolinska Institutet, Sweden
  • UKB                     Universitätsklinikum Bonn, Germany
  • UH                       University of Helsinki, Finland
  • OPBG                  Ospedale Pediatrico Bambino Gesú, Italy
  • HH                       Hvidovre Hospital, Denmark
  • UMR                    Philipps Universität Marburg, Germany
  • UTARTU             University of Tartu, Estonia
  • UA                        University of Antwerpen, Belgium
  • concentris           Concentris research management GmbH, Germany
  • ExtensiveLife     Extensive Life Oy, Finland

Logo du projet EPICE