Research on European Children and Adults born Preterm
The overall aim of the RECAP preterm project is to improve the health, development and quality of life of children and adults born very preterm (VP), i.e. less than 32 weeks of gestation, or with a very low birth weight (VLBW), i.e. less than 1500g. We will investigate the origins of VP/ VLBW health and developmental outcomes to aid the development of more effective, evidence-based, personalised interventions and prevention measures.
The RECAP preterm Cohort Platform, will bring together extensive data from 20 population-based cohorts of children and young adults born very preterm from 13 European countries as well as further cohorts from around the world.
- to create a sustainable, geographically diverse and multidisciplinary platform of national and European cohorts of VP/ VLBW, constituted over a 30 year time span, to optimise the use of population data for research and innovation in healthcare and policy
- to develop hypothesis-driven research on health and care of VP/ VLBW children and adults that builds on the unique opportunities provided by the larger sample sizes of combined cohorts and the added value of their geographic and temporal diversity
- to integrate exchange with stakeholders into the platform in order to disseminate results, to translate them into evidence-based care and policy
- to involve society and emphasize patient and public involvement in order to reflect real-world needs
This unique network will enable us to evaluate changes in outcomes over time while providing important information on how the evolution in care of these high-risk babies has changed their developmental outcomes and quality of life.
The project coordination is ensured by the coordinator (TNO) in tandem with the Project Management Office (TNO, UoW and INSERM)
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 733280.
RECAP preterm brings together 20 transdisciplinary Institutions (see participants below).
- TNO Netherlands Organisation for Applied Scientific Research Netherlands
- UoW The University of Warwick, UK
- INSERM Institut National de la Santé et de la Recherche Médicale, France
- ISPUP Institute of Public Health of the University of Porto Portugal
- MedLaw MedLawconsult (Van Veen, Toegepast Gezondheidsrecht) Netherlands
- INESC TEC Instituto de Engenharia de Sistemas e Computadores, Tecnologia e Ciência, Portugal
- ULEIC University of Leicester, UK
- THL National Institute for Health and Welfare, Finland
- EFCNI European Foundation for the Care of Newborn Infants, Germany
- NTNU Norwegian University of Science and Technology, Norway
- KI Karolinska Institutet, Sweden
- UKB Universitätsklinikum Bonn, Germany
- UH University of Helsinki, Finland
- OPBG Ospedale Pediatrico Bambino Gesú, Italy
- HH Hvidovre Hospital, Denmark
- UMR Philipps Universität Marburg, Germany
- UTARTU University of Tartu, Estonia
- UA University of Antwerpen, Belgium
- concentris Concentris research management GmbH, Germany
- ExtensiveLife Extensive Life Oy, Finland